What does “Patient registry” mean?
A structured collection of data on patients receiving a treatment outside a clinical trial.
Patient registry in plain English
A structured collection of data on patients receiving a treatment outside a clinical trial.
The UK Medical Cannabis Registry is the largest such dataset in this country and is the source of much of the published UK outcome data.
Registry data describes what happens to people who receive treatment. It cannot establish that the treatment caused the change, because there is no control group and participants are not randomly assigned.
Frequently asked questions
What does patient registry mean?
A structured collection of data on patients receiving a treatment outside a clinical trial.
Sources and further reading
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